Migraines HUGE topic here
Many of us suffer/deal with/hunt/beg for solutions to our headaches and migraines. Here’s what I’ve done so far and what has worked and what has not.
Had 3 migraines in 42 years prior and 4 5 headaches a year (with sinus infections). I have had either a headache or migraine daily since not too long after my accident. Usually between a 3 4 on pain scale. As I move up to 6 7, I welcome other pain as a distraction haven’t done anything to myself. At 8,9, I have DARK thoughts. I share my pain level with hubby and he knows what it means. I’d say I haven’t hit a 10 because in my mind that’s: Get me to the hospital because I will hurt myself!
I’ve been diagnosed with occipital neuralgia, vestibular migraines, neck issues, and I think I have ocular migraines too (will be addressing that with eye dr).
For me I use gallon size bags of frozen peas about 1/2 way full. They conform to my neck or head nicely and stay frozen well. Currently have 3 bags in the freezer. I prefer this over heat. If I have a migraine I have peas on top of whatever else I do.
My vestibular doc in Chicago is great. He started me on Topamax. Wasn’t on it very long (3 months). Neurologist didn’t agree with it and took me off. I did experience facial numbing, lost 10 lbs, but did not notice a change in H/M.
Neuro did 2 sets of nerve blocks in his office. (Steroids finally started eating) The pain from the nerve block as he did it was a wonderful distraction from the migraine. Sadly this helped 40% for 6ish weeks. Second set worked for around 4 weeks. He then sent me to a pain specialist.
Pain specialist first did shots in my neck (can’t remember exactly what it was but it helped 50%ish in neck).
Neurologist sent me for head and neck therapy. Felt great while I was there. She did gentle manipulations on head muscles and bones, and neck. Loved when she put pressure on both sides of my head and did manual traction on my neck. All of her movements were gentle. A few hours later I would have wretched migraines that put me down an entire day. I’m on break from this therapy now. Not sure if it will continue.
Neurologist sent me for nerve ablation for the occipital neuralgia with pain specialist. For my doctor it’s a three step process for each side. First starting with the X rays and my symptoms he determined what nerves to burn. Appt. 1 starts with numbing shots next to each nerve in neck on left side. Not fun, but quick.
For the next few hours at home I pay attention to the pain and let him know what percentage it helped. If it is high enough (40 50%ish for me) he would do it again to see if that same response was attained. This helps him know if he has the correct nerves. There are two weeks between each shot and follow up appt.
Then the burn. I took .5 Xanax for the procedure. I did not want sedation with my fog/dizzy brain. The burn starts lower in the back by those nerve roots. He inserts a large needle while watching it on real time X ray and numbs each nerve root. I had five numbed on each side. Ouch! Then the procedure. Large needle with burn ending inserted on nerve root. He burns for around a minute. Repeat for rest of nerve roots.
Painful procedure. It took me 6 weeks to recover from the procedure. The first week hurt the most. You do feel a burning, and the needles go through tissue, muscle, and it aches for weeks. Lots of peas! Healing from the second procedure now.
Relief: migraines have dropped from nearly daily every month to 10 a month. Headaches still here daily, plus if I over stimulate my vestibular system as I am doing now, my headaches can turn into migraines. Should give me anywhere from 9 18 months beautiful relief. WOULD DO IT ALL OVER AGAIN!
In between pain blocks, my vestibular doctor put me on Keppra. I lost 1/2 my hair. omega watches He took me off. No difference in H/D. We decided to wait to try anything else until I heal from the nerve blocks. Then I will know whether or not the vestibular med works.
My issues are listed below. I try to work at prevention a lot. I’ve been trying to type this for a while now. If you have things that you’ve done that have worked or don’t let us know. It may work for others or not.
If you have headaches/migraines get your neck checked too!!!
04 14 2014, 04:51 PM
Curcumin (after a few weeks) eliminated my headaches completely, and they were terrible at first. I couldn’t even move at times, and I had to have all the lights off.
I still have constant pressure in my head, but the headaches are gone. I guess the pressure could maybe be considered a headache, so I’ve noticed that rest, frequent breaks, and a full night of sleep help the pressure go away. I also can’t handle much sugar. If I eat a piece of chocolate or something, my head fee omega watches ls like it is going to explode. On the days that I manage to avoid sugar, wheat, and dairy, I feel very good.
Massage: It felt good for about 5 minutes and then the whole following week was the worst experience I ever paid for. (I did this for a month straight and then gave up.)
Pain Killers: I tried so many I can’t remember, but a few of them made me dangerously depressed, others made me sick to my stomach, but most just did nothing. Advil works, but I had to start taking 800mg every 4 hours and that just isn’t healthy so I gave that up except on very special occasions where I have to be able to function (such as this summer when I will be a bridesmaid in a wedding).
Heat/Cold: both are triggers for migraines and relief just depending, and the relief never lasts long because if I use it for to long it becomes a trigger for another migraine
Caffeine: It can be a relief, but now I am addicted so it is also a trigger, I have to drin omega watches k a cup first thing in the morning and then it is relief for an hour or so and then another at noon, and then another around 4. Sometimes it feels better for a short time and then it makes it worse.
Exercise: Anything that causes my head to jiggle or jostle in any way causes extreme headaches that last weeks. Also, anything that raises my heart rate or how hard I am breathing. So basically anything besides an easy walk is out. I believe that if I could just get through the pain for 2 months I might begin to see improvement from exercise, but I can’t spend the rest of those 2 months in bed, so I can’t try out the experiment.
Rest: It is good to sleep or rest, b omega watches ut since we can’t exercise too much rest can cause anxious energy which is a trigger. Also, the pressure of even a soft pillow is painful, I have to constantly wake up to switch sides so that I have a nice full headed headache in the mooring instead of a one sided headache. I know someone who swears that her memory foam pillow is magic, but it does not work for me, too much pressure.
Reading: I have switched to audio books, but I have to listen to them on speakers not headphones.
Drinking: Not drinking enough definitely causes migraines, but drinking enough does not stop them from occurring.